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Every year on July 23rd, the Sjogrens Syndrome community comes together to observe Sjogrens Syndrome Day. This important event aims to raise awareness about this chronic autoimmune disorder, fostering a supportive community, and empowering patients. By educating the public, dispelling myths, and providing resources, this annual event contributes to improved diagnosis, treatment, and quality of life for individuals living with Sjogrens syndrome.
Sjogrens syndrome is one of the most common autoimmune diseases; it affects about 1 in every 70 people, and about 90% of those affected are women. Sjogrens syndrome arises from the immune system attacking healthy tissues, such as the moisture-producing glands.
Despite its prevalence, many people remain unfamiliar with Sjogrens syndrome, which can lead to delayed diagnosis and inadequate treatment. By highlighting the key symptoms, such as dry eyes, dry mouth, and fatigue, Sjogrens Syndrome Day aims to promote early recognition and understanding among the general population and healthcare professionals.
World Sjogrens Syndrome Day was first created in 2010 and the creation of the Sjogren Foundation was the idea of Elaine Harris who was a frustrated patient of Sjogren herself. She wanted to improve the diagnosis, education, and research for Sjogrens syndrome.
Dr. Henrik Sjogren, the Swedish ophthalmologist, discovered the pattern of Sjogren syndrome in 1933. The same day was selected to honour World Sjogren Day in advocating the education, and research of Sjogren disease.
It has been reported worldwide in adults and rarely in children. The disorder, however, has a marked inclination for women, the female: male ratio is approximately 9:1. The disease is usually common in middle age but may appear in children as well as the elderly.
Sjogrens Syndrome Day also focuses on empowering patients by providing them with knowledge, resources, and a sense of belonging. Online forums, social media campaigns, and local events create opportunities for individuals to connect, share experiences, and learn from one another. These platforms also enable patients to access valuable information about managing symptoms, treatment options, and lifestyle modifications.
In addition, Sjogrens Syndrome Day often features educational webinars, conferences, and expert-led discussions that aim to enhance patients understanding of the condition. By empowering patients with knowledge, they become active participants in their healthcare journey, advocating for their needs, and seeking appropriate medical care.